Blockchain-based Personal Health Records and Health Data Sharing: Are Patients Ready?

Presented by Victoria Lemieux et Chang Lu as a part of the 2020 Serene-risc Workshop on The State of Canadian Cybersecurity Conference: Human-Centric Cybersecurity.

About the presentation

Recently, researchers have suggested that Bblockchain technology may precipitate a paradigm shift in personal health records (PHR) by enabling patients to become co-contributor to the validation, maintenance and synchronization of health data. Compared to existing PHR systems where healthcare providers decide whether and which data to share with patients and patients are only “additional accessors” rather than data owners, Blockchain-based systems represent a redistribution of information control and a structural advancement towards patient-centered care.In addition, blockchain provides patients the opportunity to share health data, at their discretion, with interested third parties while privacy and security risks are minimized. While existing literature focuses on the technical features of blockchain, this presentation will highlight the importance of understanding patients’ attitude and readiness to use this emerging form of  technology.

About the speakers

Victoria L. Lemieux is an Associate Professor at the University of British Columbia School of Information and Founder and Co-Lead of Blockchain@UBC, a blockchain and distributed ledger technologies research and education cluster. Her interests include risk to the availability of trustworthy records, in particular in blockchain record keeping systems, and how these risks impact upon transparency, financial stability, public accountability and human rights. Dr. Chang Lu is a postdoc research fellow at Blockchain@UBC. Currently, he is conducting research on blockchain adoption in healthcare, examining the organizational and ecosystem structures and processes that would hinder or facilitate adoption. Theoretically, he is interested in nascent technology commercialization, institutional change, and decentralized organizing. He has published several articles on leading management journals and taught undergraduate and MBA students. He earned his Ph.D. in Strategic Management and Organization from the School of Business, University of Alberta, and has won several scholarships and awards. Prior to his academic career, he worked as an HR professional in China and Europe.